Summary

The July 2025 meeting focused on several key areas, including the future development of the Focus Group, the charity’s emerging five year strategy, and ideas for future Wellness Hub sessions.

Members shared valuable feedback on how the Focus Group could have a greater impact, including making actions and outcomes more visible, improving opportunities for feedback, and reviewing how the group operates. There were also discussions about hybrid meetings, future social activities, and potential topics for upcoming Wellness Hub events, with an emphasis on ensuring sessions remain relevant to people living with muscular dystrophy.

A number of actions were agreed, including reviewing the Focus Group’s terms of reference, exploring new ways to gather and share service user feedback, and developing future Wellness Hub content based on members’ suggestions.